On the mend. Sister Wives star Maddie Brown shared an update with fans after her daughter, Evie, underwent her first surgery to amputate her foot and operate on her hand, which are the first steps in treating her rare medical condition called fibular aplasia, tibial campomelia and oligosyndactyly (FATCO) syndrome.
“Evie received some major gifts for her 1st birthday. Her surgeon laid the groundwork for her new foot and mobility it will bring, by way of a Boyd amputation,” Maddie wrote via Instagram as she posed with her baby girl, whose leg and hand were wrapped in bandages, on Monday, August 24. “Another [operation] gave her some extra mobility in her hand, by clipping her webbing she had in her right hand. She is home and is recovering beautifully.”
Evie was diagnosed with FATCO, which is an extremely rare genetic disorder that affects bone formation in utero, when Maddie was 28 weeks pregnant. Since the cause is unknown and the disorder is so rare, there was no way to anticipate what the future might hold for the little girl. One of the procedures Evie recently underwent, a Boyd amputation, is an amputation at the ankle that helps with stabilization.
After Maddie and her husband, Caleb Bush — who are also parents to Axel, 3 — welcomed their daughter on August 20, 2019, they took their time before sharing Evie’s condition with their fans. In October of that year, they revealed Evie was born without a thumb, toe and two of her fingers were fused together. Additionally, she was also missing a fibula (commonly known as the calf bone) and also had a bowed tibia (shinbone) in one leg.
Although Maddie was nervous to open up about Evie’s condition, she thought it would be best to share their story. “It’s abnormal, and it catches people off guard, but I want her to grow up and feel proud about who she is. If I’m hiding this to protect her, is it really helpful?” the mom told People.
Since sharing her diagnosis, Maddie has discussed how she’s adjusting her expectations for the life she thought Evie would have. “We all want to give our children the best fighting chance. Most times that best fighting chance is different [than] what we think it should be,” she wrote on Instagram in April. “Evie’s life will look different than I thought and that’s OK. She was #bornjustright to live the life that gives her the best fighting chance.”
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