Being a mom is never easy, but it's even harder having a child with a disability. Leah Messer's daughter Aliannah Simms was born with Titin’s muscular dystrophy, a rare form of the disease that hadn’t ever been seen in children before Ali. Leah does everything she can to make her beautiful eight-year-old feel normal, but recently she's been asking about her eyes. Leah shared the candid moment with fans on Twitter, and it's absolutely devastating.
"As I’m doing Ali girls makeup she looks at me and says, 'Mom, what’s it like to see with two eyes?'" Leah wrote along with a sobbing emoji. Ali's disease is degenerative, and over time she will lose the function of many of her muscles. Apparently it started early in her eyes, making it harder for her to see. To help with the muscle weakness, she wears adorable glasses, but apparently that doesn't stop her from feeling different.
As I’m doing Ali girls makeup she looks at me and says. “Mom, what’s it like to see with two eyes?” … 😭
— Leah D. Messer (@TM2LeahDawn) April 4, 2018
"Everyday I wish I could take her place but I know there’s a greater purpose!" said Leah, who also revealed that this is "the first time she's asked" about her eyes, but she's been asking more and more questions about her health lately. While Leah knows Ali is "special," it still hurts her as a mother to see her daughter hurting. "Just broke my heart," she wrote.
Leah went on to retweet other parents who have gone through similar things with their children, and the results were touching and inspiring. "My nephew has MD and he’s the most determined little boy, he won’t ever let you tell him he can’t do something! Ali reminds me of him…kids with MD are special and so resilient!" said one fan. Another wrote, "She will be phenomenal because of her struggles. She will not struggle in vein. She has purpose. Purpose to overcome and live a beautiful life." Keep up the good work, Leah.
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